Laura decided today to have surgery to relieve her spinal fluid pressure. If all goes as expected, she’ll be in the hospital on Friday for a day.
We’ve had busy days meeting with doctors yesterday and today (Tuesday). Meanwhile, Laura and I have the strong impression that her symptoms are worsening significantly from a week ago — as do her doctors. All of her doctors (three oncologists and a neurosurgeon) are all in agreement that her symptoms are due to intracranial pressure, that the symptoms should be addressed quickly, and that the way to do so is via a shunt, which relieves the extra fluid pressure.
Right now Laura is miserable and fatigued. We’ve had some depressing episodes recently and mobility has become a major issue. This afternoon we tried to stop for a bite at a favorite cafe in Northampton, but as she walked passed the back of the car she started to fall and I had to drag her limp back to the car. She was very upset to acknowledge that she can’t go anywhere anymore without a wheelchair.
On top of that, her headaches seem to be more severe, longer, and more frequent. Now vomiting sometimes precedes the headaches and is associated with loss of muscle control in her head and arms — which has twice been a sad mess in the car on the way to an appointment. Her eyesight is deteriorating slightly.
It’s all understandably very upsetting for her. Laura’s frightened that she’s already missed out on the opportunity to do things that she wants to do and hopes that the the surgery will restore some of her former self quickly.
So radiation is stopped for now. We met with a top-notch neurosurgeon this morning at Baystate hospital in Springfield and he will make room for Laura on Friday. The surgery is relatively low risk — not nearly as risky as we initially thought it to be. If the surgery works, then Laura’s symptoms could be immediately relieved. It does nothing to fight the cancer and over time there’s a fair chance that it could stop working, but it seems to be the best option to try right now. Her doctors are all very hopeful and optimistic. After the surgery we can revisit the cancer-fighting options — choosing among them depending on whether surgery is successful in relieving her symptoms.
Change of course: surgery Friday
Tue, Feb 5th, 2008 10:52pm by dkulp
Tags: Uncategorized
7 responses so far ↓
1 Kay // Feb 5, 2008 at 11:15 pm
David,
Thank you so much for taking time to update us all when you must feel exhausted. Your family is in our thought s and prayers often throughout the day. You all are loved by so many….
2 Gabriella Rossini // Feb 6, 2008 at 9:21 am
Thank you for the updates. I will continue to keep Laura in my thoughts and prayers. Laura is blessed to have such a caring and loving husband. God love you all!
3 Aunt Cathy // Feb 6, 2008 at 9:24 am
Good, positive feelings for you all.
Aunt Cathy
4 Donna Chastain // Feb 6, 2008 at 11:54 am
Laura, good luck Friday and we pray this procedure will relieve your symptoms and you’ll have good days ahead. love, Donna and Calvin
5 Karuna // Feb 6, 2008 at 12:07 pm
David & Laura,
What courage you both have. Thanks for keeping all of us up-to-date.
I will hold both of you, and all the medical folks atteneding to you, in my prayers and thoughts for skill, comfort, hope and relief of pain.
May you continue to be held in the loving arms of God on this very bumpy part of your journey.
Love & Blessings,
Karuna
6 Darby Falls // Feb 6, 2008 at 3:13 pm
Laura , I think of you daily in your small and large struggles. I remember you back at St Mike’s. My brother Mark was in with you. So many of us take for granted there health. I have been on chemo for almost 10 years off and on with two small children and a husband . I think of them that’s why I keep on surviving and not giving up. I appreciate the very basic small things I accomplish in a day. I love the pictures Keep on smiling. Love Darby a friend and classmate of Heather.
7 Alisa // Feb 6, 2008 at 7:44 pm
I’m sending all my good thoughts and prayers your way. I know someone who had this kind of surgery and it worked very well –I have a strong feeling it will relieve those awful symptoms you are talking about.