Loose Strife

Laura is maybe feeling a little better this evening. But very tired and lots of neck and back pain when she moves, so she’s spent all day in bed. She occasionally says she would like to get up, but doesn’t. Her doctor had her double her pain medicine and that should be kicking in soon. […]

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A few months ago, David offered us, Laura’s family, the opportunity to share our thoughts on this blog. I hesitated because I am not good with words when it comes to personal matters. And recently, I have cried through many of my thoughts when it has to do with my family. But, I thought now […]

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Laura had a hard day today. Yesterday she switched to a different extended release pain medication and it is not working as expected. She’s compensating with additional immediate action meds, but is still in pain and spent all day in bed with little sense of time. While the pain isn’t extreme, it seems to have […]

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I keep getting asked how Lily’s first day of school went. She’s now had two half days and starts full days of kindergarten on Tuesday. So far so good. Excitement riding the bus and only good things to say about school. As a girl of few words who clams up when asked for details, she […]

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I don’t really know why, because I hardly did anything, but I’m trying to remember the series of events during our trip to Virginia and it’s not quite all there. I checked my camera; didn’t take many pictures either. I drove Laura and the girls down to Annandale on Friday. We stayed with her parents […]

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Laura’s been doing about the same over the last couple days. Maybe a little more pain. But mostly she’s frustrated about her fatigue and irreversible troubles like her double vision. Her fatigue continues to be severe — as I mentioned last time; she struggles to keep her eyes open most of the day. And so […]

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Photos from June, July, and part of August are finally up in the photos section.

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Over the last week Laura has been in surprisingly good spirits even as her sundry problems continue to worsen. Her vision and balance is further deteriorating, which is her main complaint. Getting around is annoying and sometimes difficult. Laura can’t decide whether the double vision is better than the loss of depth perception if she […]

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Laura has continued to do well in the sense that she’s keeping food down and is not in much pain. She sleeps till noon, but then has much more energy than she has had for months. Baking a cake, finding new recipes — she hasn’t cooked anything for ages — and today she spent the […]

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The last two days have been surprisingly very good for Laura. I’m keeping my fingers crossed that the drugs she started on Friday are the reason why she is no longer throwing up, is eating normally, and has had no headaches. And when Laura’s awake, she’s been doing lots of normal activities — rummaging through […]

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